Cardiff and Vale University Health Board is looking for additional lay panel members to sit on the Individual Patient Funding Request (IPFR) Panel.
The role of the Lay Representative combines being a member of a decision making panel with providing independent guidance and constructive challenges to support decisions related to individual patient funding requests. Lay members provide a key role in helping to ensure the needs and experiences of patients and the public of Wales are fully considered when individual patient funding request (IPFR) decisions are made.
Individual Patient Funding Requests are requests to the Health Board to fund NHS healthcare for individual patients who fall outside the range of services and treatments that a health board has agreed to routinely provide, or commission. This can include a request for any type of healthcare including a specific service, treatment, medicine, device or piece of equipment.
An IPFR request will normally be within one of the three following categories;
- a patient and NHS clinician have agreed together that they would like a treatment that is either new, novel, developing or unproven and is not within the Health Board’s routine services and treatments (for example, a request to use a cancer drug that has yet to be approved by the Health Board for use in that particular condition);
- a patient and NHS clinician have agreed together that they would like a treatment that is provided by the Health Board in certain clinical circumstances but this particular patient is not eligible;
- a patient has a rare or specialist condition that falls within the service remit of the Welsh Health Specialised Services Committee (WHSSC) but is not eligible in accordance with their clinical policy criteria for treatment (for example, a request for plastic surgery where the indication is personal preference rather than medical need).
It is important to note that the NHS in Wales does not operate a blanket ban for any element of NHS healthcare. Each IPFR application is considered on its individual merits at an IPFR Panel, in accordance with the arrangements set out in the policy. At the IPFR Panel it is determined if the patient should receive funding based on the significant clinical benefit expected from the treatment and whether the cost of the treatment is in balance with the expected clinical benefits.
As a member of the All Wales IPFR Panel, the Lay Member has a shared responsibility for ensuring that the decisions made by the Panel are fair, equitable and transparent. The role is essential in ensuring that the Panel acts in the best interests of the population of Wales at all times by helping to ensure that the decisions made are based on robust clinical information which supports safe and effective treatment; provides best use of public money and, most importantly, takes into consideration the views of the public.
The panel meets on a fortnightly basis, currently on a Monday afternoon from 14:00 – 16:00. Lay members would be provided with all of the dates for IPFR Panels taking place in 2021 and can indicate availability. Attendance is based on two lay members per IPFR Panel, on a rota schedule.
The panel is currently meeting remotely due to Covid-19. Panel meetings would usually be held at the University Hospital Wales. There may be the occasional need to locate to University Hospital Llandough or Woodland House.
Panel members’ commitment is around half a day for each fortnightly panel and travel expenses can be reimbursed.
Please contact the IPFR Team for the role description, supporting information and application process by emailing CAV.IPFR@wales.nhs.uk
Closing date 19th March 2021.
The Chair of the Cardiff and Vale UHB IPFR Panel will undertake a shortlisting process and the shortlisted candidates, will be invited along to discuss their applications.
In the meantime, should you have any queries, or require further information, please contact the IPFR Team at by e mail atCAV.IPFR@wales.nhs.uk
For an informal discussion about the panel and these opportunities, please contact:
Dr Richard Hain, Consultant and Clinical Lead, All-Wales Managed Clinical Network in Paediatric Palliative Medicine – Chair of the IPFR Panel or
Elinor Hammond, Commissioning Manager – Strategy & Development – Senior Officer for IPFR
Tags: Advocacy, Community
Cardiff and Vale University Health Board,
Please mark the envelope Private and Confidential for the Attention of Elinor Mercer, Commissioning Manager – Strategy & Development.